Wednesday, 25 November 2020

What to do to keep sane with a chronic illnes

Hi There..... Are you going insane from all this Corona madness? Or are you trying to keep sane?

You know, I was trying to keep sane long before all hell broke loose. That’s because I am different. No, just kidding, I am not that different from everybody else. The only difference between most of you and me is maybe my chronic illness. 😊

Some have a hard time understanding why I can’t go to work, but blogging isn’t an issue. It’s not just the pain I cope with daily, but also concentration problems because of the pain from my chronic health conditions. πŸ˜”

I can’t make my blog posts working a few hours in a row. Let me rephrase that, I can't do anything for a few hours in a row period. I have to break everything up into short time spans. 😞

Some days I am more productive than others, depending on how well I slept and how severe the pain is. Being able to write though gives me the feeling I can still accomplish things. Like I am still worth something and my chronic illness doesn't make me into a total wreck. πŸ˜ƒ

If you would like to know more about my chronic illness you could start by reading this blog post. Don't forget to come back after. 😁

That reminds me of how mean I was when I was a teenager, but I wasn’t alone. Our grandmother was always whining about the many things wrong with her. Lucky people without a back, that’s what she always said. She would always complain about the pain in her back. And now I have the same problem as she did. The difference was that she loved to talk about it. If you named a certain disease, you could bet your bottom dollar she had been ill from it too. 😏

I realize now that it isn’t nice but me and both my sisters would laugh at her behind her back. We cooked up a plan to trick her. On our next visit, we were going to tell her a story about a friend that had been ill. Nothing mischievous about that, except that we invented the disease this so-called friend was suffering from. We were giggling in advance already. 😁

I don’t recall which of us 3 told her the story, but what I can tell you is that our trick worked. We had a hard time trying to keep a serious face. Yes, we did still have some decency not to laugh at her right in her face. Must be because she pampered all her grandkids. I have a lot of fond childhood memories about her too. 😍

That is one reason I rarely talk about my chronic illness to my loved ones. I know they would listen without a doubt, but I just don’t want to bore them. There is always this voice in the back of my head ‘not too much, don’t nag’. Oh my, I just told you I hear voices. πŸ™‰

Just skip this paragraph. Pretend I didn't write it. 😱

Maybe it's best to change the subject and tell you about this wonderful daily healing journal I received from Begin Within Today in return for my honest opinion.

This is what her website says about this journal.

Begin Within Today is about Therapy, Life Coaching and Resources meet you, and or your loved one(s) exactly where you or they are, which is in perfect and divine timing. 

As an organization, they are rooted in a foundation of respect, sensitivity, compassion, and understanding, using a holistic approach. 

They believe healing begins from within, focused on the abundant strengths and resources you already have. 
They hope their journals and services empower and support you to find confidence, freedom, balance, joy, peace, independence, and clarity from within.

That sounds like a great place to start 'from within'. 😊

The woman behind this journal, Patricia (Christina) Kantzavelos, specializes in chronic health conditions and trauma, which she understands first hand. 

Chronic medical conditions (i.e. diabetes, dysautonomia, EDS, Lyme disease, Hashimoto’s, mast cell activation syndrome, vasculitis, sickle cell disease, mold illness, etc.) often come with significant challenges, like fear, anxiety, medical PTDS, and may interfere with relationships and daily function. 

She uses various holistic evidence-based treatment modalities and practice-based evidence, contingent on each person’s needs and goals, with an added focus on mindfulness techniques, positive psychology, and strengths-based therapy.

picture by John Hain on Pixabay

I have just started working with this journal, but it looks like a handy tool for anyone with chronic illness. It makes you pay attention to every detail of your day, and it could provide great insight. 

It helps you find the link between what you ate or did, the medication you took, your vitals, and the effect it has on you. The journal lets you write how you feel, your frustrations, successes, and where you think you failed. There even is a small space on what you like about your body. I am all in for body-positivity.

It's a great way to make you feel better about yourself. And that is so important because you really don't want to get depressed. I have been there, and it's not where you want to end up, believe me. 

This journal doesn't only look wonderful, but it’s ECO-FRIENDLY, and last but not least a portion of this journal's sales gets donated to an organization that promotes advocacy, research, and resources to/for the chronic illness community.

Hope you like my blog post.....Until next time.....Have a great day 

Renata (Seadbeady) 

Want to be on my blog next time ??  Want me to review your product?? Just send me a message at😊


  1. Living with a chronic health condition really affects your quality of life, I struggle with reactive hypoglycaemia and I can feel my cognitive functions deteriorating every 2-3 hours when I need to eat to raise my blood sugar levels. It also doesn't help that I exist in a permanent state of dizziness and muscle weakness either

  2. Begin Within Today sounds like great read. I’ll check it out!

  3. I can't imagine how it feels to have this chronic illness. thanks for sharing knowledge.

  4. You are so brave to push through all this and still manage to produce great blog posts. You are amazing for even being able to do this.

  5. you are amazing for being so honest and transparent and most importantly courageous about talking your illness!!! Amazing...

  6. I always feel like I shouldn't talk too much about my pain to my siblings too or to anybody. It always makes me feel like I am wining.

  7. Heel herkenbaar helaas! Zelf ook chronisch ziek en afgekeurd. Mag ik vragen wat voor een diagnose je hebt?

    1. Artrose en Overstrekkende gewrichten vooral :)

  8. Je maakt me wel nieuwsgierig naar deze journal .Hij klinkt heel goed.

  9. I know of two persons who have similar qualities! First one is my husband's senior manager who thinks himself as wikipedia, he knows everything!You share your story and he will say he already experienced it��. Second person is my aunt who loves talking about her diseases. She actually suffers from various diseases though �� But we as family know this thing, outsiders find her very boring at times ��That journal looks great!

    Everything Enchanting

  10. klinkt als een goed 'boek' ik ga het eens checken, kan ik misschien wel wat mee


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